Read Supporting Jamie, on page 361. Knowing howchildren with special challenges may have less resistance toinfections, what would you do to decrease Jamie’s risk of gettingsick if you were his support worker?
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CHAPTER 20 Caring for the Young 361 Supporting Jamie: Offering Respite to Family Jamie is a happy, fun-loving boy who has just cele- brated his twelfth birthday. Like many preteens his ages he likes to watch television and listen to music. Jamie is in Grade 8 and is looking forward to attending high school next year. He does well in school, but he is not sure yet about the career he wants to pursue. Jamie is just beginning his growth spurt. His family has noticed that he has grown taller and his voice is getting deeper. He has three younger brothers, and his mother and stepfather care for Jamie when he is home from school. Jamie has cerebral palsy and is wheelchair dependent. He is often incontinent of urine, so he must wear incontinence products. Because of his ever-increasing size, his mother (who has always been his primary caregiver) has rented a mechanical lift and is able to use it to toilet, bathe, and move Jamie from the bed to his chair. Jamie also requires assistance with eating. He communicates by way of a computer, which sounds out the words that he types using the keyboard. After putting off surgery on her knee for several years, Jamie’s mother is now going to have a total knee replacement and will therefore not be able to care for Jamie for several weeks. You are one of the support workers who will be caring for Jamie in his home during this time. Your duties are to assist with his activities of daily living (ADL) and occa- sionally arrange for his wheelchair taxi to drive him to school. You will get to know all of Jamie’s family, as they will be home during the afternoon and evening hours when you are there. r 90 3
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